This episode features Suresh Kumar Chhetri (Preston MND Care and Research Centre, Department of Neurology, Royal Preston Hospital, Lancashire Teaching Hospitals NHS Foundation Trust, Preston, UK) who describes a study which aimed to explore patients' experience of enteral feeding and its impact on quality of life.
The study was a questionnaire based prospective analysis of 21 MND patients receiving enteral feeding followed at 3, 6 an 12 months post gastrostomy. The questionnaire was asked participants about their quality-of-life.
The study focused on four main themes: (1) problems with enteral feeding (2) improved quality-of-life (3) no change in quality-of-life and (4) worse quality-of-life. The research found that most of the study participants acknowledged the importance of enteral feeding and had a positive attitude to this practice. However, the positive impact of enteral feeing may not be observable in the first few months post gastrostomy. Full paper available from: http://journals.sagepub.com/doi/abs/10.1177/0269216316679928
This episode features Professor Matthew Allsop (Leeds Institute of Health Sciences, University of Leeds, Leeds, UK) who describes a study that outlined and applied an evaluation framework to examine how and when electronic documentation of advance care planning is occurring in end of life care services.
The study extracted data from electronic palliative care coordination systems for 82 of 108 general practices across a large UK city.
This study reports the first methodology for evaluating how and when electronic palliative care coordination systems documentation is occurring. It raises questions about what can be drawn from routine data collected through electronic palliative care coordination systems and outlines considerations for future evaluation.. Full paper available from: http://journals.sagepub.com/doi/full/10.1177/0269216316663881